Mental illness is a rough disease, and even in recovery you must spend each day managing it. When you throw extra challenges in your life, like dealing with a loved one (LO) with dementia, staying in recovery becomes a bigger challenge. You no longer are just taking care of your illness; you are also taking care of someone else’s illness. This makes staying in the light even harder.
My loved one is in the early stages of dementia. He’s independent to a point. He is still able to stay home while I work, and he can help me with some stuff around the house, but he still needs my help with a lot of things. I take care of his medication, make his lunches before work, and leave reminders on Alexa for him to eat it. I also remind him to take care of his hygiene, I manage his diet for diabetes, I keep track of his appointments, and I also remind him about small stuff too. I also have to handle changes in his mood like arguing and anger outbursts.
He’s young, only in his sixties, and I’m only fifty-one. It’s so unfair that he has this illness at such a young age. We should have many more years to make memories, but we don’t. We must make every moment count now. I’m sad, angry, and frustrated. Some days I want to lie in bed and cry. I wish I had a magical wand to take this illness from him. He gets so frustrated when he can’t remember things and it breaks my heart.
So much has been taken away from him because of dementia that it feels like he’s losing everything. He can no longer work, he can’t drive, and his memory is fading. At times I’m the bad guy because I must tell him repeatedly, he can’t drive, he can’t work, he forgot to shower, and much more. He gets mad at me, and I try not to take it personally, but it hurts.
Dealing with my LO’s illness is very emotional and threatens to throw me back down the hole of depression, but I can’t let it. When my LO was diagnosed with diabetes I got
depressed. I knew I was going to have to manage it and make sure he follows a healthy diet on top of managing his dementia. All day at work I felt like crying, I was very sad, and just wanted to hide. When I got out of work, I told my LO I was sick and went to our room. I lay in bed crying until I fell asleep. I teetered on the edge of that dark hole.
I realized I need to take care of my mental illness while taking care of my LO. I used a program through work to help me find a therapist. I’m not in a depression, but I needed someone to confide in and to talk about my feelings to to stay in recovery. I found a therapist who understands what I’m going through and she is very good. I told my psychiatrist about my LO so he can keep track of how I’m doing. I confided in my support team. I also joined mental health and dementia support groups online.
All caregivers must take care of themselves as well as their loved ones, but it’s extra work to take care of your mental illness on top of caregiving and to stay in recovery. I find it hard to manage my medication on top of my LO’s, but I know it’s important. It’s also important to use coping techniques like journaling, relaxation techniques, finding positives, and grounding techniques. It’s okay to need a break from your LO too. Self-care is also important. Take time for yourself like having someone stay with your LO while you go out for a while, take a relaxing bath, eat healthy, exercise, take care of your hygiene, and find time for your hobbies.
Caring for yourself and your mental health is as important as taking care of your LO. I make my illness as much of a priority as my LO is. This helps me stay in the light of recovery.
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