I am not a professional in the field of mental health. All my post about mental illness come from what I learned through years of therapy and through research. Always confide in a professional first. My posts are only meant to give you suggestions, educate you and encourage you.
When my LO was diagnosed with dementia, my whole world changed and my emotions went up and down. I was too emotional to work on my next memoir. I put it aside and started going to therapy to help me deal with this horrible illness my LO suffered with and my feelings. In the meantime, I stopped writing my next memoir. I found it hard to relive the past while struggling with the present. Now that I am dealing better with my emotions, I am writing again.
This past New Year’s Day, I decided to set myself a goal to get back to writing my book. I put in my phone’s calendar that I would write every Tuesday and Friday. I asked my fellow memoir writer and friend, Amy, to encourage me and remind me to write. Amy has been great; every Tuesday and Friday I get a text from her encouraging me and reminding me to write.
I have been sticking to my goal. Each Tuesday I retreat to a quiet place, and I work on my memoir, The Years After The Garage. I struggle with a few interruptions from my husband and dog. The dog follows me upstairs and always must go out. I write in our bedroom while my husband is downstairs watching TV. However, our bathroom is across from our bedroom, and after he uses the bathroom, he pops his head in and wants to talk. I try to remind him nicely I’m busy writing. I miss the days when he worked early in the morning and he went to bed at seven PM. It was the perfect time to write.
Despite the interruptions, I have been writing. Most writers keep track of how many words they write, but I’m different. I keep track of how many pages I write. I post on Facebook and send a text to Amy each writing night, telling her how many pages I wrote. I usually write two pages each on Tuesday and Friday. I know it doesn’t sound like a lot, but I finished two chapters and started another one.
I enjoyed reliving the Summer Enrichment Workshop for writing I attended in 1991. The program was held at Chatauqua High School. I made a friend on the bus and learned a lot about writing. In the afternoon the teacher took us to Chautauqua Institute, a nonprofit education center and summer resort. The Institute was magical for me and inspiring. I loved it there. I found many wonderful spots to write.
In this new book I still spend time at my grandparents. Instead of my grandparents living at the family garage, they now live forty-five minutes away in a home on endless acres of land. My cousins, Denny and Russell, are no longer around to go on adventures with. My siblings and I must entertain ourselves in other ways. The strong bond with my grandparents is unwavering. Instead of seeing my grandparents during coffee break, we see them on Sundays. We either have dinner with them or come after we have eaten at home.
I’m still bullied in this book, but the bullying changes and I slip further into mental illness. If the garage is gone, how do I escape from the bullying? What keeps me from falling to the bottom of the hole of my illness? How do I succeed when I feel hopeless and worthless?
Right now, I’m working on chapter twelve. I’m starting tenth grade. I have written three and a half pages in this chapter. This book will go to twelfth grade when I graduate from high school. Now I have to start going back to Pennwriters so I can get critiques on the chapters I have written. Pennwriters helps me grow as a writer and improve my writing.
Writing my book helps me help others and heal from the pains of the past. It also helps me strive to stay in the light of recovery.
Many times when we think about recovery from an illness, we think of being healed or back to normal health and strength. Those who are recovered from the flu are healthy again. When it comes to mental illness, recovery has a different yet similar meaning. Most mental illnesses have no cure.
When we’re in recovery we are in a new normal. Our minds are clearer, we’re able to live a functional life, and we are stronger. Despite being in recovery, we still have mental illness, and we must take steps each day to manage it. We still have bad days, but we have coping skills to get through them.
What recovery means to me:
What does recovery from mental illness mean to you? Fight your illness and find out what it means to be in recovery. Mental illness is treatable, and most people can find relief from their illness if they are willing to do the work and willing to fight. You don’t have to live your life at the bottom of the dark hole. You can find happiness, function in society, and live in the light. Find your determination and fight the battle to recovery.
It took me a long time to find recovery, but I’m glad I found it. I live a beautiful life in the light of recovery.
We all deal with stress in our lives. It’s all around us. When we struggle with mental illness, stress seems like a huge cloud hanging over us, threatening to throw us deeper into our hole. To handle that stress, we must first identify the things in our lives that cause stress. Knowing what causes you stress will help you find ways to avoid them and ways to cope with them.
I talked to my therapist about the things in my life that are causing me stress, and then we talked about how to cope with them.
Below is a list of things that cause stress.
These are only a few things that cause stress. Stress can make fighting mental illness harder. If we identify what causes us stress and find ways to cope with them or avoid them, it will help us reach recovery or stay in recovery. With mental illness you need to know your limits and use boundaries to protect your mental health. On a piece of paper list the things in your life that currently cause you stress. Then come up with a plan on how to cope with them or, if you can, avoid them.
Right now, I’m dealing with a lot of stress in my life: a sick loved one, a dog recovering from surgery, finances, and a badly bruised thumb. My therapist told me to practice self-care and to focus on the things I can change and let go of the things I can’t change. By doing this I stand in the light of recovery.
Stressors are things in our lives that cause physical, chemical, or emotional strain triggering a stress response. Stressors are all around us. They are in our environment, they are events, and they are also internal. When stressors happen to you, how do you cope with them? Do you let them tear you down or find ways to ease them?
I have a lot of stressors in my life right now. I was sick over a week ago with a viral infection and haven’t completely recovered. On top of that my dog, Esther, had surgery on her leg and requires a lot of care. The cost of her surgery and visits to the vet are adding up. I’m also trying to take care of my loved one with dementia and get him in-home care. I’m doing all this plus I work as a cashier.
Esther had a lump on her leg. It started out small, I thought it was because of her arthritis. The lump got bigger and that worried me. I had the vet look at it when I took Esther for her blood work. They said it was concerning so I set up an appointment to have it looked at further. When they aspirated it, they said the cells were abnormal and they needed to remove the lump and biopsy it.
Esther had her surgery last Tuesday. The vet had us coming in every couple of days to change her bandages, and that was not cheap. So, I asked them for the supplies to do it myself. The vet said no running, jumping, or rough housing for Esther. Trying to keep a dog from jumping is nearly impossible. I try to lift her on and from furniture as much as possible. I carry her outside down our porch stairs so she can go to the bathroom. I also carry her upstairs to her bed in our room at night. Taking care of Esther is stressful. I have dealt with some anxiety because of it.
On top of Esther’s care is the cost of the surgery and appointments with the vet. It’s adding up on my credit card. Finances are another stressor for me. I worry a lot about paying bills and having money to live on. Thanks to some extra money we got last year, I paid off our credit cards and now they’re adding up again.
On Thursday we had an appointment to get my loved one in-home care. We went over paperwork which included our income, how much we have in our checking and savings account, what we own such as properties and vehicles and our bills. This triggered more stress. My loved one needs help, I need the help, but I fear we won’t qualify because of income.
While dealing with all of this, I am not a hundred percent better after having a viral infection. My nose keeps running, I have drainage down my throat, and a cough because of the drainage. Plus, I have some fatigue. Not feeling good is a stressor. It’s hard to deal with everything and work when I don’t completely feel like myself.
Due to all the stressors in my life, I have been having anxiety attacks. To deal with the stressors in my life, I have been using coping techniques. Journaling helps me get out my feelings and release my stress. Texting with my support team and talking to my therapist helps me get the support I need. My friend Cheryl often gives similar advice as my therapist does, and I call her my first therapist. I also practice relaxation techniques such as deep breathing, guided imagery, and grounding. I do woodburning, a hobby of mine. I also make sure I am getting plenty of rest.
Sometimes we can’t avoid the stressors in our lives, but we can cope with them. Using coping techniques will help you better handle stressors. If the coping techniques I mentioned don’t work for you, talk to a therapist to find ones that will. Stressors make mental illness harder to handle, but if you cope with them you can work towards recovery.
Using coping techniques to handle my stressors helps me bathe in the light of recovery.
Being a caregiver is a very hard and trying job. We love our loved ones (LO), but taking care of them can be very difficult. We are the ones they know well and the ones telling them what they can or can’t do, cleaning up after them, and in some ways invading their privacy. We take on a role that is self-sacrificing. We often give up our own needs for the ones of our LO’s, but even caregivers have limits. We as caregivers must understand our limits and know when to ask for help.
My LO is in the early stages of dementia, but there is still a lot I must do. I have to fix him a lunch and set up reminders for him to eat it before I go to work. I have to remind him to shower and change his clothes. I have to watch his diet because he has diabetes. I also have to keep track of all our finances and important matters. Much of what I must do does not come easily. He gets mad at me and argues with me. It’s hard to tell a grown man he needs to shower and change his clothes without insulting him. He takes offense.
I often feel like the bad guy. I’m the one who tells him he can’t have his sugary sweets or drinks. I’m the one who has to enforce the fact that he can’t drive anymore or work. I’m the one he says is always nagging him to do things he forgot to do and who takes things away from him. It’s hard to be the enemy. It hurts and takes a lot out of me emotionally. Sometimes I don’t want to argue so I let him have that doughnut or lemonade. I want things to go back to the way they used to be when we worked as a team, but I know things will only get worse.
I go to therapy to talk about what is going on with my LO and to keep my mental health stable. My therapist has been telling me for several sessions that I need to find in-home care for my LO and I need to know my limits. I have been resisting getting help because I know he won’t like it. My LO is determined that he can take care of himself. He can to a point. There are things he needs extra help with, and I have been trying hard to help him. He’s very stubborn and seems even more stubborn now.
My therapist is right. I need to know my limits and understand not to push them too far. There’s nothing wrong with asking for help. My LO is not quite old enough to get help through Medicare. I texted a good friend about needing to find in-home care for my husband. She suggested a program called Voices for Independence. It’s a program that helps people with disabilities be able to live their lives independently. Dementia is a disability and an illness. I called them and we have an appointment in our home this Thursday.
Unsure how to tell my husband about this appointment, I posted on a dementia support group on Facebook. They told me to say I need help, which is true. I need help because I’m pushing myself beyond my limits and it’s affecting me emotionally. I can only do so much for him. I know some care givers have it a lot harder than me, but I also know if I understand my limits now, it will help me in the future when my LO’s illness progresses. There’s nothing wrong with asking for help.
I know I must take care of not only my LO, but also my mental health. Being a caregiver takes a lot out of us mentally and physically. We as caregivers must also take care of ourselves and know when to seek extra help even if that means getting another caregiver, looking into nursing facilities, or turning to friends and family for support. Understanding our limits and obeying them will help us be better care givers.
I’m hoping the appointment with Voices of Independence will go well Thursday. If not, I will investigate other options. Knowing I have limits and being willing to ask for help keeps me standing in the light of recovery.
No blog post this week because once again I have a viral infection. I’ve been sleeping a lot. When I get better I’ll write another post. Thank you for your patience.
You know that old saying, “When it rains it pours?” Well it holds true to life’s challenges. When life’s challenges come raining down on us, it only takes a moment before more problems pour down. Things seem to go wrong all at once. They start small and get bigger. It’s a lot to handle. We often wonder if we have enough strength to handle it. It’s especially hard when you’re struggling with mental illness or are in recovery. How do you keep yourself from falling apart? What do you do for yourself during the rough times?
Lately life seems to be pouring problems down on my husband and me. It seems like it’s too much to handle. It started when we got our car inspected and found out we had a leak in the muffler. Then we got the dreaded phone call telling us our nephew had passed on, and after returning home from his memorial service, I got sick with a viral infection. We got an estimate on our muffler and found out we needed a new muffler and exhaust manifold. The cost was over a thousand dollars. Next my viral infection turned into a sinus infection, and I got a bad rash on my face. Then I didn’t see a car behind me while backing up and hit it. Finally, a lump on our dog’s leg grew bigger, and when we took her to the vet, they said there were unusual cells in it and they needed to remove it. Plus, they found that our dog has a significant heart murmur.
When I told my therapist about all the things going on in my life, she asked me, “What are you doing for yourself?”
I thought hard about it. How was I taking care of myself? When our nephew passed, I couldn’t cry and I struggled with grief and some depression. I poured out my emotions in my journal. I texted with my friend Cheryl. I took extra time off work to deal with the loss. With the muffler I took a deep breath and went through our finances to see how we could manage to get it repaired. I tried to stay positive by looking for good things about getting a new muffler, like with it fixed the car would be quieter. I practiced self-care.
At one time I used to force myself to go to work sick. That only ended up with me getting worse, and a few times I ended up in the ER with an IV. This time I called off work. I slept most of the day; when I was awake, I lay on the couch and watched TV with my husband. I didn’t do housework or even cook supper. I ordered dinner in and pampered myself. Part of self-care is nurturing yourself and taking care of your physical health along with your mental health.
I could have easily slipped into depression while things were going wrong, but I practiced self-care. I used my journal to express my feelings, I took my medications, I leaned on my support system, I did woodburning to help me relax, and I talked to my therapist. I also rested when I needed to and went to the doctor. Plus, I made sure to take my medications as prescribed.
When your life gives you too many challenges to handle, it’s important to take care of yourself mentally and physically. What things can you do to take care of your needs and to show yourself love? Self-care is more than just meditating and taking bubble baths. It’s about finding ways to relax, going to the doctor, resting when your body is tired, making important decisions, setting boundaries, and managing finances. Making self-care an important part of your life helps you get through mental illness and keeps you in recovery. When life gets to be too much to handle, make sure you take care of yourself this will help you face the hard times with strength.
Things have been very hard lately. The bad things don’t seem to stop happening. Life seems overwhelming. It seems like God is giving me too much to handle, but he helps me handle it. I make it a priority to use coping techniques and self-care to face each challenge, and this helps me stay in the light of recovery.
Part of life is getting hurt by people. Sometimes they hurt us by accident, some don’t even realize they hurt us, and some hurt us because they are not nice. Getting an apology helps ease the pain, but not everyone apologizes. How do we mend our broken hearts if a person who hurt us never apologizes?
Since my book has been published, people have asked me, “Has any of your bullies read your book and apologized?”
Unfortunately, none of them has apologized and I don’t expect them to. I’m not even sure they would admit it was them in my book if they read it. My friend, Roberta, suggested I try writing an apology letter from one of my bullies to me. I thought about it and decided that would be a great idea. Below is an apology letter I have written from one of the bullies in my book, Donna. If you haven’t read my book, Escape to the Garage: Family Love Overcomes Bullying, reading my book would give you a better idea about what Donna did to me.
Dear Aimee,
I’m so sorry I called you a retard and other names in school. I didn’t understand what a learning disability was. I was a fool to think you were stupid. Look at you. You went to college. You wrote a book. You were never stupid or retarded. My words were cruel and wrong. I wish I could take them back. Now I’ve read your book I can see how much they hurt you. I’m sorry I caused you so much pain.
In school I thought you weren’t smart enough to ever work a job and I told you that you would be on welfare. Boy was I wrong. My life turned out to be a mess, but you went on to college, you got a degree, and you have worked the same job for twenty-seven years. I’m sorry I said that about you. I was so wrong. I’m the one who failed to succeed, but you are a success.
I’m sorry I took your friends away and turned them against you. I’m sorry I stopped other kids from making a friendship with you. I didn’t feel good about myself and I turned that on you. I made your life miserable. It wasn’t nice of me to tell others lies about you so they wouldn’t be your friend. In a way I was jealous of you. My family and home life weren’t as good as yours, so in turn I made your school days miserable. I’m sorry for that.
Maybe if I took the time to really get to know you, we could have been good friends. Maybe you could have been someone I could have confided in instead of someone I tore apart. I’m glad to see you were able to rise above the abuse I put you through and are now able to help others.
You are a smart wonderful person and I’m sorry I never took the chance to get to know you for who you are. I can never take back all the pain I put you through or heal the wounds I caused, but at least I can do is tell you how wrong I was and how sorry I am.
I am truly sorry for being so awful to you in school. I hope you will forgive me.
Sincerely,
Donna
I’d be surprised if I ever got an apology from Donna, but writing this letter helped ease the pain in my soul. It helped me see Donna as a person who acted out of ignorance and as an imperfect person instead of a monster. I’ll never be able to tell her I forgive her, but I forgive her for my own benefit. I don’t want to talk to her or have her in my life, but she is no longer that evil monster that tore me apart in school. Now I see her as a broken person who used her own insecurities to hurt me.
Try writing a letter of apology from the person who hurt you deeply. It will help you in the healing process and help you to forgive that person. It will also help you let go of the grip that person has on you. Once you have written the letter whisper or yell it out loud, “I forgive you.” Then let the wounds in your heart heal.
Writing the letter to Donna helped me heal. Because I wrote the letter I bathe in the light of recovery.
Do you ever worry about what might happen in the future? You start thinking about what could happen, and then it snowballs into a lot of “what if’s.” You think about so many “what if’s” that you feel tense in the shoulders and neck, you feel sick to the stomach, you have panic attacks, and you can’t sleep. You literally make yourself sick with anticipatory anxiety. Sometimes you get so upset that you cancel plans, stay in bed and block out the people you love.
I am guilty of struggling with anticipatory anxiety and even more now that I am doing somethings on my own since my loved one (lo)is struggling with dementia. I’m learning to be more independent and to be a caregiver. I once depended on my lo for many things. We were a team, but now I have to take care of some of those things by myself. This is scary to me.
When our nephew passed, we had to travel three hours to his memorial service. My lo and I always shared the driving, and we always drove there in the summer. In the week before the service, I started spiraling with anticipatory anxiety. The “what if’s” swirled around in my mind like a tornado.
What if we can’t get out of Erie? What if we run into bad weather on the way there? What if we get in an accident and end up dead? What if we make it there and the weather is too bad to go home? What if I can’t drive that far? What if we get stranded on the highway?
The “what ifs” made my shoulders tense, made me sick to my stomach, made my chest ache, and made emotions well up inside me like a ball caught in my throat. I told my “what if’s” to my friend Cheryl and she told me to stop worrying and I’ll be fine. She assured me that she believed I could make the trip without problems, but I couldn’t shut off my mind.
I wrote down my “what if’s” in a notebook and let my therapist read them.
My therapist said, “When you come up with a “what if,” find a solution. For each of your “what if’s,” there are solutions. I have faith you’re very capable of making this trip, but if your anxiety gets too bad, it’s okay to decide to cancel your plans. Have faith in yourself.”
So, here are my solutions for my “what ifs.”
With solutions to my “what if’s” I had a set plan and our trip no longer seemed so scary. My anxiety began to lift. We packed our car the night before and left early the next morning. Starting out it was snowy and a bit difficult to see, but I kept going. Farther down the highway the snow faded away and the sun shone. It was sunny for the rest of our trip. I stopped a couple times to stretch my legs, but we made it to our hotel without any problems.
The memorial service was on a Saturday, and we were going to stay until Monday, but because of a storm coming across Pennsylvania and much of the US, we left for home after we got some food at the meal after the service. The trip home was great. Sunny skies all the way home. The snowstorm hit the next day, and we were safe in our home. My anxiety was for nothing. I was so proud of myself for making the trip there and back without any problems.
If you’re struggling with anticipatory anxiety, come up with solutions for each of your “what if’s.” Once you do that, you’ll see that you have a plan for things that could go wrong. Having a plan makes the anxiety less powerful and helps ease your physical reactions.
From now on when I’m struggling with anticipatory anxiety, I’m going to come up with solutions, and this will help me stay in the light of recovery.
I apologize for another week without a post. We went to Sommerset, PA and attended our nephew’s memorial service January 24. It was a beautiful but sad service. We left for home right after the service to miss the snow storm. Then Monday I became sick with a viral infection. I have spent the whole week in bed. I’m just now starting to feel better.
I will write a post next week. Until then keep fighting for recovery from mental illness. Find the positive in your life.
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